Today we’d like to introduce you to Ericka Adams.
Ericka, let’s start with your story. We’d love to hear how you got started and how the journey has been so far.
Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas, tiny clumps of inflammatory cells that can’t affect any organ in the body causing them to not work properly and in some cases the organ can shut down.
This organ in the body include the heart, skin, liver, kidneys, brain, sinuses, eyes, muscles, bones, and other areas. Sarcoidosis most commonly targets the lungs and the lymph nodes.
Once thought rare, sarcoidosis is now known to be common and affects people worldwide. The disease can affect people of any age, race and gender; However, it’s more common among African Americans and Northern Europeans. In the United States, the disease affects African Americans somewhat more often and more severely than Whites.
February 2008 after being sick for three weeks and rapidly getting worse I was diagnosed with this debilitating disease. The disease was very aggressive! The neurologist that I was seeing at the time explained to me about the disease. It appeared I had Sarcoidosis in my lung, lymph nodes, lacrimal and parotid glands, muscles, frontal sinus, liver. My life was turned upside down at the age of 32. I was in excruciating body swelling and pain all day, barely could walk without assistance, nauseated, fatigued 24 hours a day shortness of breath chest pain! I was told I wouldn’t live to see thirty-five (which was 3 years)! The doctor said there was No Cure but she could treat me but it would just make the symptoms less but not cure it, and she wanted me to see a pulmonologist (Dr Wait) and see what else they could do to try and slow the progress of the Sarcoidosis! I was treated with steroids and Methatrexate with a few more drugs.
I didn’t have a support group to talk to, no one knew about this weird disease other than Foundation for Sarcoidosis research on line information I felt there were no resources!!
So seven years later after exceeding the three years I started Adams Sarcoidosis Awareness. This was my God given purpose! We offer a support group meeting for not only the person that has Sarcoidosis but also for their family: The family need to understand this disease to know how to help and support their loved ones. With fundraisers and donations, We also offer temporary financial support for those suffering from Sarcoidosis that have had a hardship!
Our support group meet the second Saturday of each month at Methodist Hospital Richardson 10am-11.
We’re always bombarded by how great it is to pursue your passion, etc – but we’ve spoken with enough people to know that it’s not always easy. Overall, would you say things have been easy for you?
No. Just being chronically ill and people looking at me saying you don’t look sick as if you have to look a certain way if your ill!
We’d love to hear more about your business.
Adams Sarcoidosis Awareness is a 501 c 3 nonprofit organization. We pride ourselves in being a reliable resource for those suffering from Sarcoidosis and their loved ones. We educate the community through health care fairs, church events any community event we can go to so that we can pass out information on Sarcoidosis or speak about it.
We provide support group meeting the 2nd Saturday of each month at Methodist hospital Richardson Texas 10am-11am.
What sets us aside from others is that our donations and fundraising funds go directly to benefiting the people and educational material not the board. No one from our board get paid, all of our staff are VOLUNTEERS!!
What were you like growing up?
Happy, outgoing, always helping my mom around the house and helping the elderly in my neighborhood by cleaning up for them or going to the store.
- Website: Www.asawareness.org
- Phone: 469-630-2960
- Email: firstname.lastname@example.org
Stylist: Crystal Crain